St. Vitus Foundation

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Mission

The mission of the St. Vitus Foundation is to help sufferers of Amyotrophic Lateral Sclerosis (ALS) and their immediate families, in any way possible.

 

“ALS is a family disease.  This horrible illness impacts the sufferer, spouses, children, caregivers and countless others. ALS families need help in every aspect of life, and that is the purpose of our charity.”

— PHIL KAIN, FOUNDER

 

Founder, Phil Kain and Family

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Our Story

We have lost loved ones to the disease of ALS.  We are biased.  We hate this disease.  But we love ALS patients and their families.  The despair and destruction of ALS is a call to action for all of us to help the ALS families to survive and thrive in the face of this adversity.

The disease of ALS takes the physical life of its host in a gradual declination of physical attributes, with no rhyme, no reason and no certainty.  Uncertainty is the rule when trying to predict or define ALS.  First and foremost, ALS is horrible for the person who has ALS.

But the disease of ALS is also cruel and unforgiving to the spouses and immediate families of the ALS patient.  Every aspect of their lives are impacted and effectively turned upside down.  Spouses, parents, children and siblings have to sit and watch their loved one deteriorate, every day, right in front of them. All the while, knowing that the life expectancy is 5 years or less.  

There is the financial, legal, social, emotional and psychological toll that the disease takes on the spouse and family members.  It is absolutely brutal.  But from those challenges can spring the goodwill of all of us to lend a helping hand.  Please join us in our mission.